ENTRIES TAGGED "health data"

Esther Dyson on health data, “preemptive healthcare” and the next big thing

Dyson says it's time to focus on maintaining good health, as opposed to healthcare.

If we look ahead to the next decade, it’s worth wondering whether the way we think about health and health care will have shifted. Will health care technology be a panacea? Will it drive even higher costs, creating a broader divide between digital haves and have-nots? Will opening health data empower patients or empower companies?

As ever, there will be good outcomes and bad outcomes, and not just in the medical sense. There’s a great deal of thought around the potential for mobile applications right now, from the FDA’s potential decision to regulate them to a reported high abandonment rate. There are also significant questions about privacy, patient empowerment and meaningful use of electronic health care records.

When I’ve talked to US CTO Todd Park or Dr. Farzad Mostashari they’ve been excited about the prospect for health data to fuel better dashboards and algorithms to give frontline caregivers access to critical information about people they’re looking after, providing critical insight at the point of contact.

Kathleen Sebelius, the U.S. Secretary for Health and Human Services, said at this year’s Health Datapalooza that venture capital investment in the health care IT area is up 60% since 2009.

Given that context, I was more than a little curious to hear what Esther Dyson (@edyson) is thinking about when she looks at the intersection of health care, data and information technology.

Read more…

Comments: 9

Health records support genetics research at Children’s Hospital of Philadelphia

Michael Italia on making use of data collected in health care settings.

Michael Italia from Children's Hospital of Philadelphia discusses the tools and methods his team uses to manage health care data.

Comment: 1

Health records support genetics research at Children's Hospital of Philadelphia

Michael Italia on making use of data collected in health care settings.

Michael Italia from Children's Hospital of Philadelphia discusses the tools and methods his team uses to manage health care data.

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Top Stories: June 11-15, 2012

Top Stories: June 11-15, 2012

The future of desktops, ethics and big data, narrative vs spreadsheets.

This week on O'Reilly: Josh Marinacci predicted that 90% of computer users will rely on mobile, but 10% will still need desktops; the authors of "Ethics of Big Data" explored data's trickiest issues; and Narrative Science CTO Kris Hammond discussed narrative's role in data analytics.

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mHealth apps are just the beginning of the disruption in healthcare from open health data

Rockstars from music, government and industry convened around healthcare at the 2012 Health Datapalooza

Two years ago, the potential of government making health information as useful as weather data may well have felt like an abstraction to many observers. In June 2012, real health apps and services are here, holding the potential to massive disrupt healthcare for the better.

Comments: 3
Who owns patient data?

Who owns patient data?

Look inside health data access and you'll see why "ownership" is inadequate for patient information.

Patients, doctors and providers have a unique set of privileges that do not line up exactly with a traditional concept of ownership.

Comments: 3
Quantified me

Quantified me

Tracking health data to maintain awareness and intention.

I'm trying to walk the line between obsessive tracking and an open ended approach to motivation.

Comments: 5
Four short links: 22 May 2012

Four short links: 22 May 2012

Budget App, Health Insurance Data, Perl Release, and HTML5 WYSIWYG Editor

  1. New Zealand Government Budget App — when the NZ budget is announced, it’ll go live on iOS and Android apps. Tablet users get details, mobile users get talking points and speeches. Half-political, but an interesting approach to reaching out to voters with political actions.
  2. Health Care Data Dump (Washington Post) — 5B health insurance claims (attempted anonymized) to be released. Researchers will be able to access that data, largely using it to probe a critical question: What makes health care so expensive?
  3. Perl 5.16.0 Out — two epic things here: 590k lines of changes, and announcement quote from Auden. Auden is my favourite poet, Perl my favourite programming language.
  4. WYSIHTML5 (GitHub) — wysihtml5 is an open source rich text editor based on HTML5 technology and the progressive-enhancement approach. It uses a sophisticated security concept and aims to generate fully valid HTML5 markup by preventing unmaintainable tag soups and inline styles.
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What do mHealth, eHealth and behavioral science mean for the future of healthcare?

Dr. Audie Atienza focuses on the intersection of behavioral science, data and healthcare apps.

We're just at the beginning of discovering how to best develop and utilize mobile technology to improve the health of individuals and the public, says Dr. Audie Atienza.

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Principles of patient access in Directed Exchange

This is an opportunity to rethink how health data flows.

In this digital world, health data that's 36-hours old can only be analyzed as a post-mortem. Health data that's 30-days old is already rotting.

Comments: 2