- Personalized Leukemia Treatment (NY Times) — sequenced the tumor’s DNA, found the misbehaving gene, realized there was an existing experimental treatment to tackle that gene, and it worked. Reminds me of My Daughter’s DNA, which had its origin in the poignant story of Hugh Reinhoff sequencing his daughter’s DNA to diagnose her condition. It’s all about medical professionals now, but that’s no different from the Internet starting with geeks and moving out to the masses.
- Bullseye HD — web app which allows you to make the most of the time you spend with your team, by focusing your attention on the projects and actions that are off-track or not getting enough focus, rather than wasting precious time on status updates. (via Rowan Simpson)
- Per Vices — selling software-defined radio boards (for Linux only at the moment). (via Ars Technica)
- Post-Hadoop (GigaOm) — Google have moved beyond the basic software that Hadoop was copying. Lots of interesting points in this article, including one fundamental reality – MapReduce (and thereby Hadoop) is purpose-built for organized data processing (jobs). It is baked from the core for workflows, not ad hoc exploration.
Personalized Medicine, Reporting on Execution, Software-Defined Radio, and Beyond Hadoop
Public Spending Links, Telemedicine Questioned, Comments Re-examined, and Informed Consent
- Stop Treating People Like Idiots (Tom Steinberg) — governments miss the easy opportunities to link the tradeoffs they make to the point where the impacts are felt. My argument is this: key compromises or decisions should be linked to from the points where people obtain a service, or at the points where they learn about one. If my bins are only collected once a fortnight, the reason why should be one click away from the page that describes the collection times.
- UK Study Finds Mixed Telemedicine Benefits — The results, in a paper to the British Medical Journal published today, found telehealth can help patients with long-term conditions avoid emergency hospital care, and also reduce deaths. However, the estimated scale of hospital cost savings is modest and may not be sufficient to offset the cost of the technology, the report finds. Overall the evidence does not warrant full scale roll-out but more careful exploration, it says. (via Mike Pearson)
- Pay Attention to What Nick Denton is Doing With Comments (Nieman Lab) — Most news sites have come to treat comments as little more than a necessary evil, a kind of padded room where the third estate can vent, largely at will, and tolerated mainly as a way of generating pageviews. This exhausted consensus makes what Gawker is doing so important. Nick Denton, Gawker’s founder and publisher, Thomas Plunkett, head of technology, and the technical staff have re-designed Gawker to serve the people reading the comments, rather than the people writing them.
- Informed Consent Source of Confusion (Nature) — fascinating look at the downstream uses of collected bio data and the difficulty in gaining informed consent: what you might learn about yourself (do I want to know I have an 8.3% greater chance of developing Alzheimers? What would I do with that knowledge besides worry?), what others might learn about you (will my records be subpoenable?), and what others might make from the knowledge (will my data be used for someone else’s financial benefit?). (via Ed Yong)
Open Source Implants, Gut Fungus, Closed Source Damage, and Microtask Framework
- When Code Can Kill or Cure (The Economist) — I’ve linked to the dangers of closed source devices before, but this caught my eye: “In the 1990s we developed an excellent radiation-therapy treatment-planning system and tried to give it away to other clinics,” says Dr Mackie. “But when we were told by the FDA that we should get our software approved, the hospital wasn’t willing to fund it.” He formed a spin-off firm specifically to get FDA approval. It took four years and cost millions of dollars. The software was subsequently sold as a traditional, closed-source product.
- Gut Fungus (Wired) — the microbiome of bacteria in your body is being studied, but now researchers have scoured the poop of different species and found different mycological populations in each, and linked them to diseases.
- Evaluating the Harm from Closed Source (Eric Raymond) — whether or not you argue with his ethics, you will appreciate the clear description of the things you’re trading off when you choose to use closed source software.
- PyBossa — a free, open-source, platform for creating and running crowd-sourcing applications that utilise online assistance in performing tasks that require human cognition, knowledge or intelligence such as image classification, transcription, geocoding and more! (via The Open Knowledge Foundation)
Dr. Audie Atienza focuses on the intersection of behavioral science, data and healthcare apps.
We're just at the beginning of discovering how to best develop and utilize mobile technology to improve the health of individuals and the public, says Dr. Audie Atienza.
Healthcare Ain't Silicon Valley, Math for Makers, Open Source Musician Tools, and Learn to Make Languages
- Five Tough Lessons I Had To Learn About Healthcare (Andy Oram) — I don’t normally link to things from Radar but this gels 110% with my limited experience with the healthcare industry.
- Makematics: Math for Makers — I want the hardware hackers who are building the next generation of DIY 3D printers to be able to turn topological algorithms and concepts into open source tool path generation software that creates more efficient gcode and enables the fabrication of previously impossible physical forms. I don’t know the best way to go about this, but this site is intended to act as home for my experiments.
- CASH Music — they build open source tools for musicians and labels to make money. What WordPress did for bloggers, we’re doing for musicians. (via New York Times)
The Quantified Professor, Bus Monitor, Arduino Confessor, and Ethics of Deceit
- Examining His Own Body (Science Now) — Stanford prof. has sequenced his DNA and is now getting massively Quantified Self on his metabolism, infections, etc. This caught my eye: George Church, who has pioneered DNA sequencing technology and runs the Personal Genome Project* at Harvard Medical School in Boston that enrolls people willing to share genomic and medical information similar to what’s presented in the Cell report, says some might critique Snyder’s self-exam as merely anecdotal. “But one response is that it is the perfect counterpoint to correlative studies which lump together thousands of cases versus controls with relatively much less attention to individual idiosyncrasies,” Church says. “I think that N=1 causal analyses will be increasingly important.”
- Bus Arrival Monitor (John Graham-Cumming) — hacked a toy doubledecker bus with LED display feeding bus arrival info from the Transport for London API via a modded Linksys WRT router.
- Arduino Tool That Connects Each Board to Its Own Source (Ideo) — If you create something with Arduino and put it out into the world, there is no well-established link to the source. If you personally made the device, the source can get lost over time. If you didn’t create it, you could have a tough time tracking the source down. You have the physical device, why can’t it tell you where it’s code lives? I made a tool for Arduino called “Upload-And-Retrieve-Source” that for the most part solves this problem. (via Chris Spurgeon)
- Mike Daisey is a Liar and So Am I — I linked to the original This American Life story, so now I’m linking to the best commentary on their retraction of the story. This is an excellent piece on the ubiquity and ethics of Daiseyesque means-justifies-the-end for-a-good-cause deceit.
Big data introduces unique healthcare challenges and opportunities.
The proliferation of digital health information, including both clinical and claims information, is creating large datasets and significant opportunity.
Analytics in Excel, HTTP Debugger, Analytics for Personalized Healthcare, and EFF To The Rescue
- Excel Cloud Data Analytics (Microsoft Research) — clever–a cloud analytics backend with Excel as the frontend. Almost every business and finance person I’ve known has been way more comfortable with Excel than any other tool. (via Dr Data)
- HTTP Client — Mac OS X app for inspecting and automating a lot of HTTP. cf the lovely Charles proxy for debugging. (via Nelson Minar)
- The Creative Destruction of Medicine — using big data, gadgets, and sweet tech in general to personalize and improve healthcare. (via New York Times)
- EFF Wins Protection of Time Zone Database (EFF) — I posted about the silliness before (maintainers of the only comprehensive database of time zones was being threatened by astrologers). The EFF stepped in, beat back the buffoons, and now we’re back to being responsible when we screw up timezones for phone calls.
The Direct Project is poised to become the first health Internet platform.
Given the way that healthcare is financed in the U.S., it's reasonable to expect that many doctors will have a Direct email address to communicate with other doctors and their patients in a few years.
From healthcare to finance to emergency response, data holds immense potential to help citizens and government.
The explosion of big data, open data and social data offers new opportunities to address humanity's biggest challenges. The open question is no longer if data can be used for the public good, but how.