ENTRIES TAGGED "data"

Extracting value from the IoT

Data from the Internet of Things makes an integrated data strategy vital.

Union_Pacific

Union Pacific uses infrared and audio sensors placed on its tracks to gauge the state of wheels and bearings as the trains pass by.

The Internet of Things (IoT) is more than a network of smart toasters, refrigerators, and thermostats. For the moment, though, domestic appliances are the most visible aspect of the IoT. But they represent merely the tip of a very large and mostly invisible iceberg.

IDC predicts by the end of 2020, the IoT will encompass 212 billion “things,” including hardware we tend not to think about: compressors, pumps, generators, turbines, blowers, rotary kilns, oil-drilling equipment, conveyer belts, diesel locomotives, and medical imaging scanners, to name a few. Sensors embedded in such machines and devices use the IoT to transmit data on such metrics as vibration, temperature, humidity, wind speed, location, fuel consumption, radiation levels, and hundreds of other variables. Read more…

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Where did the issue of health data exchange disappear to?

More visible at Health Privacy Summit than Health Datapalooza.

On the first morning of the biggest conference on data in health care–the Health Datapalooza in Washington, DC–newspapers reported a bill allowing the Department of Veterans Affairs to outsource more of its care, sending veterans to private health care providers to relieve its burdensome shortage of doctors.

There has been extensive talk about the scandals at the VA and remedies for them, including the political and financial ramifications of partial privatization. Republicans have suggested it for some time, but for the solution to be picked up by socialist Independent Senator Bernie Sanders clinches the matter. What no one has pointed out yet, however–and what makes this development relevant to the Datapalooza–is that such a reform will make the free flow of patient information between providers more crucial than ever.

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Four short links: 29 May 2014

Four short links: 29 May 2014

Modern Software Development, Internet Trends, Software Ethics, and Open Government Data

  1. Beyond the Stack (Mike Loukides) — tools and processes to support software developers who are as massively distributed as the code they build.
  2. Mary Meeker’s Internet Trends 2014 (PDF) — the changes on slide 34 are interesting: usage moving away from G+/Facebook-style omniblather creepware and towards phonebook-based chat apps.
  3. Introduction to Software Engineering Ethics (PDF) — amazing set of provocative questions and scenarios for software engineers about the decisions they made and consequences of their actions. From a course in ethics from SCU.
  4. Open Government Data Online: Impenetrable (Guardian) — Too much knowledge gets trapped in multi-page pdf files that are slow to download (especially in low-bandwidth areas), costly to print, and unavailable for computer analysis until someone manually or automatically extracts the raw data.
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Sequencing, cloud computing, and analytics meet around genetics and pharma

Bio-IT World shows what is possible and what is being accomplished

If your data consists of one million samples, but only 100 have the characteristics you’re looking for, and if each of the million samples contains 250,000 attributes, each of which is built of thousands of basic elements, you have a big data problem. This is kind of challenge faced by the 2,700 Bio-IT World attendees, who discover genetic interactions and create drugs for the rest of us.

Often they are looking for rare (orphan) diseases, or for cohorts who share a rare combination of genetic factors that require a unique treatment. The data sets get huge, particularly when the researchers start studying proteomics (the proteins active in the patients’ bodies).

So last week I took the subway downtown and crossed the two wind- and rain-whipped bridges that the city of Boston built to connect to the World Trade Center. I mingled for a day with attendees and exhibitors to find what data-related challenges they’re facing and what the latest solutions are. Here are some of the major themes I turned up.

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Citizens as partners in the use of clinical data

A Knowledge Currency Exchange for health and wellness

This article was written together with Mike Kellen, Director of Technology at Sage Bionetworks, and Christine Suver, Senior Scientist at Sage Bionetworks.

The current push towards patient engagement, when clinical researchers trace the outcomes of using pharmaceuticals or other treatments, is a crucial first step towards rewiring the medical-industrial complex with the citizen at the center. For far too long, clinicians, investigators, the government, and private funders have been the key decision makers. The citizen has been at best a research “subject,”and far too often simply a resource from which data and samples can be extracted. The average participant in clinical study never receives the outcomes of the study, never has contact with those analyzing the data, never knows where her samples flow over time (witness the famous story of Henrietta Lacks), and until the past year didn’t even have access to the published research without paying a hefty rental fee.

This is changing. The recent grants by the Patient-Centered Outcomes Research Institute (PCORI) are the most visible evidence of change, but throughout the medical system one finds green shoots of direct patient engagement. Read more…

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Four short links: 28 April 2014

Four short links: 28 April 2014

Retail Student Data, Hacking Hospitals, Testing APIs, and Becoming Superhuman

  1. UK Government to Sell Its Students’ Data (Wired UK) — The National Pupil Database (NPD) contains detailed information about pupils in schools and colleges in England, including test and exam results, progression at each key stage, gender, ethnicity, pupil absence and exclusions, special educational needs, first language. The UK is becoming patient zero for national data self-harm.
  2. It’s Insanely Easy to Hack Hospital Equipment (Wired) — Erven won’t identify specific product brands that are vulnerable because he’s still trying to get some of the problems fixed. But he said a wide cross-section of devices shared a handful of common security holes, including lack of authentication to access or manipulate the equipment; weak passwords or default and hardcoded vendor passwords like “admin” or “1234″; and embedded web servers and administrative interfaces that make it easy to identify and manipulate devices once an attacker finds them on a network.
  3. Postman — API testing tool.
  4. App Controlled Hearing Aid Improves Even Normal Hearing (NYTimes) — It’s only a slight exaggeration to say that the latest crop of advanced hearing aids are better than the ears most of us were born with. Human augmentation with software and hardware.
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Changes in the health care system driven by self-service and DIY health

Apps reflect the public's pressing health concerns

Health care is migrating from the bricks-and-mortar doctor’s office or care clinic to the person him or herself at home and on-the-go–where people live, work, play, and pray. As people take on more do-it-yourself (DIY) approaches to everyday life–investing money on financial services websites, booking airline tickets and hotel rooms online, and securing dinner reservations via OpenTable–many also ask why they can’t have more convenient access to health care, like emailing doctors and looking into lab test results in digital personal health records.

The public clamor for digital outreach by health providers

85% of U.S. health consumers say that email, text messages, and voicemail are at least as helpful as in-person or phone conversations with health providers, according to the Healthy World study, Technology Beyond the Exam Room by TeleVox. Furthermore, one in three consumers admits to being more honest when talking about medical needs via automated voice response systems, emails, or texts than face-to-face with a health provider.

And three in ten consumers believe that receiving digital health care communications from providers—such as texts, voicemail, or email—would build trust with their providers. Half of people also say they’d feel more valued as a patient via digital health communications. When people look to engage in health with an organization, the most important enabling factors are trust and authenticity.

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Four short links: 22 April 2014

Four short links: 22 April 2014

In-Browser Data Filtering, Alternative to OpenSSL, Game Mechanics, and Selling Private Data

  1. PourOver — NYT open source Javascript for very fast in-browser filtering and sorting of large collections.
  2. LibreSSL — OpenBSD take on OpenSSL. Unclear how sustainable this effort is, or how well adopted it will be. Competing with OpenSSL is obviously an alternative to tackling the OpenSSL sustainability question by funding and supporting the existing OpenSSL team.
  3. Game Mechanic Explorer — helps learners by turning what they see in games into the simple code and math that makes it happen.
  4. HMRC to Sell Taxpayers’ Data (The Guardian) — between this and the UK govt’s plans to sell patient healthcare data, it’s clear that the new government question isn’t whether data have value, but rather whether the collective has the right to retail the individual’s privacy.
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Four short links: 18 April 2014

Four short links: 18 April 2014

Interview Tips, Data of Any Size, Science Writing, and Instrumented Javascript

  1. 16 Interviewing Tips for User Studies — these apply to many situations beyond user interviews, too.
  2. The Backlash Against Big Data contd. (Mike Loukides) — Learn to be a data skeptic. That doesn’t mean becoming skeptical about the value of data; it means asking the hard questions that anyone claiming to be a data scientist should ask. Think carefully about the questions you’re asking, the data you have to work with, and the results that you’re getting. And learn that data is about enabling intelligent discussions, not about turning a crank and having the right answer pop out.
  3. The Science of Science Writing (American Scientist) — also applicable beyond the specific field for which it was written.
  4. earhornEarhorn instruments your JavaScript and shows you a detailed, reversible, line-by-line log of JavaScript execution, sort of like console.log’s crazy uncle.
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Health IT is a growth area for programmers

New report covers areas of innovation and their difficulties

infofixO’Reilly recently released a report I wrote called The Information Technology Fix for Health: Barriers and Pathways to the Use of Information Technology for Better Health Care. Along with our book Hacking Healthcare, I hope this report helps programmers who are curious about Health IT see what they need to learn and what they in turn can contribute to the field.

Computers in health are a potentially lucrative domain, to be sure, given a health care system through which $2.8 trillion, or $8.915 per person, passes through each year in the US alone. Interest by venture capitalists ebbs and flows, but the impetus to creative technological hacking is strong, as shown by the large number of challenges run by governments, pharmaceutical companies, insurers, and others.

Some things you should consider doing include:

Join open source projects 

Numerous projects to collect and process health data are being conducted as free software; find one that raises your heartbeat and contribute. For instance, the most respected health care system in the country, VistA from the Department of Veterans Affairs, has new leadership in OSEHRA, which is trying to create a community of vendors and volunteers. You don’t need to understand the oddities of the MUMPS language on which VistA is based to contribute, although I believe some knowledge of the underlying database would be useful. But there are plenty of other projects too, such as the OpenMRS electronic record system and the projects that cooperate under the aegis of Open Health Tools

Read more…

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